Friday, May 04, 2007

The Secret

Where do I tell a story...OOPS! Isn't that the theme song from Love Story?! Silly me!
I didn't realize it has been two weeks since I last wrote in this blog. My life changed forever last Friday. I am officially a Mom. A "real" Mom! Sally and I finally stood before a judge and adopted Jarrett together!

Mom Sally, Judge Freundlich, Jarrett and Ma Beverly after the adoption on April 27, 2007 at the Suffolk County Family Courthouse in Central Islip.

I have been raising Jarrett with Sally for almost eight years, so it was only a technicality. But, next weekend I will be able to celebrate Mom's Day for real! Every time I look at my son, I feel so good inside. This is the reason I am fighting so hard!

As for my health: My appointment with Dr. Rumore went well last week. Overall, he is pleased with my progress and wants me to have a second round of Rituxan next month. However, it all depends on the pharmaceutical company. It seems that the protocol calls for every six months, but he will see what he can do.

The doc was also very concerned with my memory loss. He mentioned that it can be caused by many things including medication, the disease process (which mimics Lupus), and depression.

He also concurred with Dr. Spiera that my neck flexors are still extremely weak, and that there is a lot of pain and inflammation in my elbows and wrists. Dr. Rumore suggests working on exercising those joints specifically.

When I saw Dr. Maurio (my neuropsychologist) on Tuesday, he gave me a brief neuro test on the computer. I did ok, but he is anxious to see Dr. G's results from the NeuroTrax test. My long term memory is gone. Kaput. Bye bye.

Good news is that the pool is open and finally clearing up from all the algae. Since we had such a warm winter, the pool water turned green and it took me a week to clear it up. I turned the heater on this afternoon and we are all hoping to be able to take our first dip within a few days.

With the warmer weather, I am feeling better...but I still have my moments. I sometimes forget about my disease...but then reality sets in.

I must remain positive.

Speaking of positive...have you read "The Secret?" A friend of mine lent us the DVD and it was fascinating. However, since being diagnosed...I have tried to live my life exactly as it stated. Dr. Maurio taught me to love myself and believe in the power of positive thinking.

There really is something to the Laws of Attraction. Keeping a positive attitude and positive energy around you can only be a strong force in your everyday life. When I am upset, I try to think only good thoughts. And I try to avoid people that can bring me down.

BTW...I now truly believe that God has given me this MCTD for a reason. Not as a punishment or to test me. I believe I am meant to educate others about how to lead a fulfilled life and find everlasting peace and love.

You see, I received a touching letter from someone who found this blog two weeks ago. She was diagnosed with a similiar disease and didn't know how she was going to go on each day. But, after reading about my struggles and will to survive, it inspired her to keep on fighting.

The email brought tears to my eyes. In fact, I couldn't stop crying for quite some time. I realized then, that moment, that I am here...on this this time...for a reason. This beautiful young mother was supposed to find that we could connect...and move forward together.

If I can keep on touching peoples lives with my story, it makes it all worthwhile. I promise to keep on writing and helping those who may be lost along the way.

Peace out!


Blogger Kristin said...

Congrats on making Mom status official - early Happy Mother's Day to you!!!

2:25 AM  
Blogger Kenneth said...

a blessing in disguise.. well doneim glad the secret served its purpose and kept you happy even in times of sadness.. the hardest thing is to find joy in diffcult times. the secret may not be totally biblical but it served its purpose.

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2:46 AM  

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