Wednesday, May 23, 2007

Playing Catch Up

I had promised myself that I wouldn't let so much time pass between entries...but I did it again. Where do the days go? They are flying by.

This weekend is Memorial Day, and unfortunately I am quite ill. I played a short gig on Friday night and sang more than usual since we were down one singer. My throat didn't feel right, but I attributed it to allergies.

I could barely speak for the last few days, and my throat was burning like it was on fire. I thought it best to see my primary doc, and boy...it is a good thing I did!

Not only is it not related to allergies, but I have an ear and throat infection! The doc feels that it is all sinus-related. He prescribed antibiotics, and remarked this is happening very often.

I asked if the reason I am coming down with so many illnesses lately was due to the fact that I am no longer taking prednisone. He said absolutely not...that is was all a coincidence.

This evening I felt worse, and took my temperature. My normal temp is about 97, and it started rising to about 100. I immediately took some Tylenol, and it came down a bit.

This really scares me...the fact that I cannot fight a simple infection. I am supposed to drive Mom to NYC on Friday to her doc at NY Eye and Ear. But I am not so sure I will be up to it.

I am still awaiting a call back from Dr. Rumore's office regarding my next Rituxan treatment. Seems the pharmaceutical company will only give the meds every six months, per protocol. But the protocol isn't for my disease...so thus the conflict.

My body is definitely weakening...but I am staying optimistic. Hey, the sun is shining most days and the pool is beautiful. I just need to feel good to go take a swim!

Next week I have an appointment at the Social Security office to pick up Jarrett as a dependent. I have to bring all the court papers and his new birth certificate. We will see how that goes!

I did receive a Medic Alert bracelet and membership free of charge. Seems I am entitled to lots of benefits because of my situation. But if no one tells me about them, how am I supposed to know? I will ask lots of questions at next week's meeting at the SS office.

One thing I am entitled to is a free NYS beach pass...so I sent in my materials and am awaiting a reply.

Goldie is growing really fast...she is a handful, but beautiful. Dylan finally seems to have adjusted to his new sister, and they really play hard. At first I was nervous, but he knows that he is bigger and has to be mindful of her size. I am glad he has a playmate...he is the best and deserves happiness for as long as he is with us.

In two weeks we will be celebrating Jarrett's graduation...about 30 or more people will be coming here. I found a terrific caterer and all should be set by next week. Now the weather just has to cooperate!

I can't believe my "little boy" will be going into High School this fall. Time surely flies!

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